Fibromyalgia, a slow death: a disease that can take up to 10 years to be diagnosed

Fibromyalgia is not seen, it suffers. Fibromyalgia is invisible, but millions of people who suffer from it are not.

Because fibromyalgia has become a health problem.

Although institutions continue to search elsewhere, fibromyalgia is a reality that continues to grow, which does not include social class, cultural level, age or the cardinal point. It can start in childhood and get worse over the years, with the appearance of new symptoms.

Far from being psychological, as many have led us to believe, the latest research suggests that the world is a neuroimmune disease that endangers all body systems in this way and can appear in more than thirty different symptoms. . The most disabling are pain and chronic fatigue.

“Fibromyalgia is a chronic and debilitating disease of unknown cause and without effective treatment.”

For many years, he avoided this definition and preferred to blame the patient lying, complaining, neurotic, depressive, deceitful, victim … to the point that most of the company believed that fibromyalgia is synonymous with storyteller and all forums are spoken. So disdainful and distrustful of these patients.

The people in question are exposed to a “popular trial” with a verdict: “life imprisonment”, condemned to be trapped in their homes, not to prepare, not to smile … because if they do, they are redesigned. “It will not be so bad when everything is solved”, “it seems that she laughs, it will not be so bad …”

In addition to being sick, society challenges their right to live and be happy. People with physical difficulties who are successful at a sporting or personal level are examples to follow and inspire admiration, and nobody doubts their disability. This admiration and empathy are evident in all diseases, except fibromyalgia.

The patient with fibromyalgia who manages to be happy, despite the illness, and manages to succeed, despite the great difficulties, is not appreciated for his strength and desire to excel, nor is it an example of life, it is simply an reason to put questioning his diagnosis and, with him, the professionalism of the doctor who gave it to him.

The fact that the harsh reality of this harsh disease has been denied for so long has caused irreparable moral and physical harm to many affected people.

In terms of health, polypharmacy has been abused and drug addicts have been created, and the fact that their environment and society are “nothing” has led to family collapses, harassment, dismissals and unfavorable sentences. inability to work.

When, despite all these collateral damages, the patient feels overwhelmed by depression, those who remain obsessed with the rejection of the evidence are confirmed by the fact that “their problem is psychological”.

Years ago we could justify this “inadequate treatment” due to ignorance of the origin of the disease, but after thirty years it no longer works. Even if we still do not know what the origin is, even if there is still no measurable indicator, it is time to take responsibility and start looking for it.

Because fibromyalgia has changed from a health problem to a social problem. It affects 5.4% of the population, 92.7% are women at risk of social exclusion.

“Fibromyalgia is a chronic disease and a debilitating disease of unknown cause and without effective treatment.” This is a direct and easy to understand sentence, it is time to accept, take responsibility and act accordingly, for example, investing in research and resources for the appropriate treatment of the disease.

Fibromyalgia is not just a pain, as someone says, as if it were not much. It affects the whole organism, so the patient goes from specialization to medical specialization, for years, until finally he gets a diagnosis that does not help much because the prescribed medication does not make the pain disappear.

The result is an extraordinary expense for the health system and a waste of time for the patient, which adds to its symptoms the side effects of polyphoria and frustration. Frustration is also shared by doctors who want to help the patient, but they feel powerless because of the lack of time in the consultations and the resources to be as multidisciplinary as they deserve.

The solution is to have the political will to invest in the research and training of the medical experts who administer these units. This form of assistance would be less expensive for the system and would improve the quality of life of the patient and, therefore, the family and professional environment. Perhaps one of the reasons why you do not study is because “fibromyalgia does not die …”

reference:Fibromyalgia, a slow death: a disease that can take up to 10 years to be diagnosed

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