I learned a lot about having fibromyalgia.
Some are things I wish I had never tried, while others made me a better person.
Here are the five things I learned:
1. It is okay to say “no”.
I spent most of my life trying to please everyone, so I rarely said the word “No”.
Now it seems to be the only answer to all the questions they ask me.
Saying no, it was something he hated to do.
I felt like I was leaving people.
Learning to say it and not feel guilty was difficult.
I realized that my body does not allow me to do everything I wanted.
It’s not my fault and I should not feel guilty about it.
I am no longer a volunteer or enroll in events or projects, because I can not always fulfill my commitments. I hate to cancel at the last minute, but sometimes it is necessary.
I have talked with family and friends so that they understand that there are times when I can not do what is planned due to my health.
If you do not understand, it’s your problem, not mine.
2. Not all doctors know what they are doing.
Doctors are ordinary people.
They make mistakes. They do not know everything.
They have bad days and sometimes make decisions they should not make.
If I think a medical professional does not understand what I’m saying or do not listen to me, I’ll leave it there.
It’s time for a new doctor. Getting a second opinion, or even a third opinion, is not a bad thing.
If I do not feel well, I’ll go somewhere else.
My health depends on well-informed doctors who have time to listen to me.
3. Listen to your body.
I hate to admit it, but I myself have caused some of my pain and suffering.
I did not listen to my body when I should.
If I have too much pain, now I rest. I do not push myself like I did when I was younger.
Being in tune with your body is one of the best ways to know when a crisis is coming. I have telltale signs that I seek.
Headaches and shoulders are often the first indicators that a crisis is near.
I can not stop it, but I can be prepared for it.
4. I found out who my true friends are.
I lost friends and family because of my illness.
I learned the hard way who really cares about me.
I fired some people because being around them was bad for my health.
Why do I want to submit to negativity and accusations?
I prefer the people who build me, not the ones who bring me down.
5. I am not alone.
And not you. When I began to experience symptoms, computers and the Internet did not exist.
Now we have the world at hand.
Online support groups have been a source of friendship and love.
There are so many who feel like I do all over the world … Now I have friends with whom I can express my feelings, which I find purifying.
I value the friends I made online.
I met some amazing fibromyalgia warriors who taught me more about this disease and also showed me that I still care!
My illness does not define me, but it changed my life in ways I never imagined.
Taking the time to really think about what fibromyalgia taught me gave me a new appreciation of life.
Seeing how I’ve evolved over the years is not as depressing as I thought it would be.
Although I have suffered physically and emotionally, I am a stronger person for this reason.